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Applied Research

Ethics in research with people who use services

  • 3 things to know
  • A2 1

Overview

Informed consent, right to withdraw and confidentiality in research.

What you need to know

Answer each one before you reveal it.

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Key term

What should a researcher do if a participant becomes distressed?

Key term

Define informed consent.

Key term

Why is written consent normally obtained?

Questions from this subtopic

Each one with the model answer underneath.

  1. 1

    Define informed consent.

    Model answer

    Informed consent is a participant's free agreement to take part, given after being told the purpose of the study, what taking part involves and how the data will be used.

  2. 2

    Why is written consent normally obtained?

    Model answer

    A signed consent form records that the information was given and understood, which protects the participant and the researcher alike.

  3. 3

    How is consent obtained for research involving a child?

    Model answer

    Research with a child needs the consent of a parent or someone with parental responsibility, and the child's own agreement should be sought as well.

  4. 4

    Which piece of Northern Ireland legislation governs decisions made for adults who cannot make them for themselves?

    Model answer

    The Mental Capacity Act (Northern Ireland) 2016 sets out how decisions are made for adults in Northern Ireland who lack capacity to decide for themselves.

  5. 5

    What is the right to withdraw?

    Model answer

    The right to withdraw means a participant may stop taking part at any point, and may ask for their data to be removed, without giving any reason.

  6. 6

    Define confidentiality in research.

    Model answer

    Confidentiality means information a participant gives is not passed to anyone outside the research and is never reported in a way that identifies them.

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