CCEA A-Level Health and Social Care 0003
Promoting Quality Care
Communication in Health, Social Care and Early Years Settings
Health and Well-Being
Safeguarding Children
Adult Service Users
Holistic Therapies
Understanding the Physiology of Health and Illness
Applied Research
Body Systems and Physiological Disorders
Providing Services
Public Health and Health Promotion
Supporting the Family
Understanding Human Behaviour
Human Nutrition and Health
Applied Research
Ethics in research with people who use services
- 3 things to know
- A2 1
Overview
Informed consent, right to withdraw and confidentiality in research.
What you need to know
Answer each one before you reveal it.
Define informed consent.
Why is written consent normally obtained?
Questions from this subtopic
Each one with the model answer underneath.
- 1
Define informed consent.
Model answer
Informed consent is a participant's free agreement to take part, given after being told the purpose of the study, what taking part involves and how the data will be used.
- 2
Why is written consent normally obtained?
Model answer
A signed consent form records that the information was given and understood, which protects the participant and the researcher alike.
- 3
How is consent obtained for research involving a child?
Model answer
Research with a child needs the consent of a parent or someone with parental responsibility, and the child's own agreement should be sought as well.
- 4
Which piece of Northern Ireland legislation governs decisions made for adults who cannot make them for themselves?
Model answer
The Mental Capacity Act (Northern Ireland) 2016 sets out how decisions are made for adults in Northern Ireland who lack capacity to decide for themselves.
- 5
What is the right to withdraw?
Model answer
The right to withdraw means a participant may stop taking part at any point, and may ask for their data to be removed, without giving any reason.
- 6
Define confidentiality in research.
Model answer
Confidentiality means information a participant gives is not passed to anyone outside the research and is never reported in a way that identifies them.
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